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Notre Dame prepares for rare disease conference to recognize rare disease day

Kelli Smith | Friday, February 9, 2018

The Boler-Parseghian Center for Rare and Neglected Diseases (CRND) will be hosting a two-day conference dedicated to raising awareness and understanding of rare diseases starting Friday. According to CRND’s website, the annual conference will feature speeches, forums, interactive stations and other events by a variety of medical and research experts from across the nation. Kasturi

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Ara Parseghian Medical Research Fund director speaks about rare disease research fundraising to student senate

Mary Bernard | Thursday, February 1, 2018

The director of the Ara Parseghian Medical Research Fund promoted the fund’s new initiatives to raise money for research on rare diseases during an address to student senate Wednesday. The director, Sean Kassen, introduced three ways students can support the cause, including using “Coffee for a Cure” Keurig cups, collecting can tabs and taking the “Pucker

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Rare diseases

Sarah Cate Baker | Tuesday, February 7, 2017

“God gives his hardest battles to his strongest soldiers.” This quote was one of many displayed last Saturday at Notre Dame’s annual Rare Disease Day. The two-day conference was hosted by Notre Dame’s Boler-Parseghian Center for Rare and Neglected Diseases and was meant to raise awareness and increase understanding of particular rare diseases. It’s an

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Rare Disease Day to raise awareness

Carolyn Hutyra | Thursday, February 12, 2015

The third annual Rare Disease Day Celebration, organized by the Boler-Parseghian Center for Rare and Neglected Diseases, will take place this upcoming weekend. Outreach coordinator Barb Calhoun and director of external programs Shahir Rizk, who both helped organize the celebration, said the event consists of a research symposium to be held in DeBartolo Hall on